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Doctorpedia Reviews

The Genetic and Rare Diseases Information Center (GARD)

July 24, 2019

Overview

 

The Genetic and Rare Diseases Information Center (GARD) is “a program of the National Center for Advancing Translational Sciences (NCATS) to provide access to current, reliable, and easy to understand information about rare or genetic diseases in English or Spanish.” The organization provides information for patients, healthcare professionals, researchers, teachers, and students.

 

Description

 

On the GARD website, users can find guides, news, and information about various rare and genetic diseases. You can browse for the disease or condition that you want and easily find that page. Some pages even have helpful videos that explain various topics, including how to find a specialist and tips for the undiagnosed.

There are sections about symptoms, treatment, prognosis, finding a specialist, research, and organizations.”

Trigeminal Neuralgia

 

The website has a page dedicated to trigeminal neuralgia that explains everything you need to know about the condition. There are sections about symptoms, treatment, prognosis, finding a specialist, research, and organizations. If you don’t want to read the written content, you can click “Listen” and a voice will read you the information in either english or spanish.

 

Guides

 

On the “Guides” tab, users can find guides that answer common questions about rare diseases. These guides are different for each audience, including patients, family, and friends, healthcare professionals, researchers, and teachers and students. 

 

English or Spanish

 

All of the content on the GARD website is available in both english and spanish so that users can understand the information in either language.

Organizations

View All Organizations

American Association of Neurological Surgeons

The American Association of Neurological Surgeons is a scientific and educational association with more than 10,000 members that is dedicated to advancing…

FaceFacts.org

FaceFacts.org features information and videos about a variety of chronic facial pain conditions, including trigeminal neuralgia. All of the written content is…

Facial Pain Association

The Facial Pain Association website has a wide array of resources and information for people with trigeminal neuralgia. Users can easily find written information…

American Chronic Pain Association

The American Chronic Pain Association (ACPA) offers “peer support and education in pain management skills to people with pain, family and friends, and health care…

NORD (National Organization for Rare Disorders)

The National Organization for Rare Disorders (NORD) “is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that…

National Institute of Neurological Disorders and Stroke

The National Institute of Neurological Disorders and Stroke (NINDS) aims “to seek fundamental knowledge about the brain and nervous system and to use that…

The Genetic and Rare Diseases Information Center (GARD)

The Genetic and Rare Diseases Information Center (GARD) is “a program of the National Center for Advancing Translational Sciences (NCATS) to provide access to…

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